Mason has a Chromosomal abnormality which both Mason and his older sister have. For Mason it means he has significant developmental delay and has refractory epilepsy to which he is on various medications for, and a ketogenic diet requiring daily bloods.
Due to Masons’ gastroesophageal reflux, Mason is fed through a feeding tube directly into his Jejunum. Mason requires oxygen continuously with regular nebulisers plus chest physiotherapy at least twice a week.
Each day is an early morning, which can sometimes start around 3am until his big sister, Laura-Jane, goes to school. In the evening, once they have both had their tea, his mum lies him on one end of the couch, and Laura-Jane on the opposite as they like to know the other one is there. Once Mason and Laura-Jane are in bed, their parents can’t settle as when they wake, they are unsure whether it is due to being restless, or because they are having a seizure and can’t catch their breath.
‘When Mason is at Zoe’s Place, it’s a little less stressful at home because you know he’s being looked after; we can catch up on a well needed sleep! It’s nice to be able to feel relaxed, and me and Dad can have time on our own and time to be Billy and Christina’ – Christina, Mason and Laura-Jane’s Mum.
Mason is a beautiful little boy who requires constant care to keep him well in himself.
23rd May, 2023
Zoe’s Place Coventry backed by Mayors civic appeal
New Mayor, Councillor Martin Walsh of Nuneaton and Bedworth’s has thrown his civic weight behind Zoe’s Place Baby Hospice’s bid to go back to 24/7 care. Following the pandemic, and…
6th May, 2022
The Boundary 500 motorcycle ride earns over £25,000 for Zoe’s Place
5th December, 2023
Gift a Precious Moment this Christmas
The festive season is upon is, and with that in mind, we were hoping you could help us out a little. This Christmas, we’d like you to gift a precious…
4th December, 2023
Big Give Donation helps us reach our £45,000 target
Recently , we spoke to Mike Lee, who’s daughter Amelia (right) comes to our hospice. He spoke to us about the care his daughter receives, and how the organisation…
29th November, 2023
Zoe’s Place Coventry gets Christmas ready
The annual Christmas light switch-on event happened at Zoe’s Place Baby Hospice Coventry on Thursday, November 23rd, 2023, bringing the festive vibes to everyone. The highlight was when Otis Brown,…