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Harry's story - A little boy with a BIG SMILE!
Coventry HospicePress Releases

Harry's story - A little boy with a BIG SMILE!

Published date: 05 August 2016

Harry's story - A little boy with a BIG SMILE!

We recently received a beautiful letter from Hayley Charlesworth that sums up so perfectly the importance of our work, we asked her if we could share it with you.  Hayley's son Harry regularly uses Zoë’s Place Baby Hospice in Coventry and lights up the hospice with his smashing smile.  

Everyone here is incredibly proud of what we do at Zoes Place Baby Hospice, but its testimonials like this that really convey the importance of our work.  We hope you enjoy reading Hayley’s letter and we encourage you to share this story to help promote the awareness of our vital work.

"My son Harry is a gorgeous 16 months old who suffered severe brain damage due to a traumatic labour and birth. As a result he has spastic quadriplegic cerebral palsy and dystonia, global development delay, visual impairment and is tube fed; the list is likely to increase. He is greatly loved by me and my husband and our three year old Daughter Lily.  He's our wonderful little smiler who melts our hearts but he's also very hard work.

Harry is sick all of the time due to his poor stomach tone and has to be watched constantly... he can't communicate with me if something is wrong.  His cerebral palsy means that he isn't able to entertain himself like other babies, he can't hold a toy or explore his surroundings, so I spend lots of time making sure he gets as much stimulation and variation as possible. He also has sleeping issues, so we are always tired. Day to day life with Harry involves lots of appointments with different medical professionals, feeding tubes and Physio. It's a 24 hour job.

Before Harry started going to Zoë’s Place I was completely at my wits end.

Not only is caring for Harry physically exhausting but it is also emotionally very hard . Coming to terms with Harry's diagnosis has been very difficult and still is, so having a break to make sure that we as a family are the best that we can be for Harry makes all the difference.

Harry goes to Zoë’s Place once a week and it provides us with quality time to spend with our daughter, catch up on the housework and on some much needed sleep.

The best thing though about Zoes Place is how much Harry loves it, the nurses and staff there are amazing. They do everything possible to make sure that Harry reaches his full potential physically and mentally. They help him by conducting physiotherapy with him and they excite him by taking him to petting zoos and big sensory centres.

Zoes place has been a lifeline for us and we just hope that they can continue to improve lives for families like mine. Zoes place is completely reliant on donations to open................ Please donate ........ So that they can continue to support families like mine." 

Yours sincerely 

Hayley Charlesworth 

 

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Comments

M Grant

It's number one on my list if I come into some money. It's a truely remarkable place.

05 August 2016 23:00
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James maclellan

Totally understand how this family feel, we are just starting our journey at Zoe's place. It has been difficult to leave our son Ethan under somebody else's care, however the professionalism and the kindness of the staff have made this somewhat easier for us to do. The work Zoe's Place does is vital for families like ours it gives us chance to spend time with Other children in our case Tristan Ethan's older brother who is now five, or just do the day-to-day things that people take for granted ie your shopping cleaning or catching up on sleep whatever it might be. If I could describe the staff and Zoe's place in one word it would have to be MAGICAL thank you so much the Maclellan family. Looking forward to supporting zoe's place with some Halloween fun on 31 October so if you live near or in Warwick please come along and say hi. Are haunted house is well worth a visit, money raised that night will be going to support Zoe's place. If you would like to come along there will be information regarding this nearer the time. Once again thank you for supporting and helping our family Ethan is beginning to relax in your company we see this from the fantastic photos you send of his fun days spent with your team.

05 August 2016 22:51
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